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Meditation Monday - The Delights of Solitude

Alone let him constantly meditate in solitude on that which is salutary for his soul, for he who meditates in solitude attains supreme bliss.  Guru Nanak

If you are still struggling with the loneliness of life beyond cancer you know the pain of being alone in your cancer experience. It's a difficult, isolated place to be, because cancer separates us from the other people in our lives. Although we often use the terms interchangeably, however, there is a tremendous difference between loneliness and solitude.

Loneliness happens when we feel isolated, cut off, misunderstood and unseen. We can and often do feel lonely while surrounded by others. In fact, when it comes to cancer survivors, I think our loneliness is at its worst when we watch our friends and family return to "normal" lives, while we live among them still reeling from cancer.

Solitude is also characterized by "aloneness," but that's where it and loneliness diverge. Solitude is a positive state of being alone with yourself, providing time to recharge, reflect and grow. Thinking and creativity often require solitude, as does self-awareness and meditation.

While the amount of solitude each individual needs is unique, most of us need some if only to get a few minutes away from the noise of our everyday lives. I discovered my need for solitude while growing up in a small Cape Cod house with ten other people. For every moment I spent as part of the group, I needed to spend twice as much time by myself.

The wonder of solitude is that it is the state of being alone without being lonely. It is a necessary time-out from society, when the only person's company we need is our own. I consider solitude a necessity in my life. Where loneliness has depleted me and made me angry, solitude brings peacefulness and fosters creativity.

I'll leave you with some beautiful quotes on solitude:

Being solitary is being alone well: being alone luxuriously immersed in doings of your own choice, aware of the fullness of your own presence rather than of the absence of others.  Because solitude is an achievement. Alice Koller

In order to be open to creativity, one must have the capacity for constructive use of solitude.  One must overcome the fear of being alone. Rollo May

A great reader seldom recognizes his solitude. Mason Cooley

But the delights of solitude don't only consist of dreaming. Next in enjoyment, I think comes planning. Anna Neagle

Conversation enriches the understanding, but solitude is the school of genius. Edward Gibbon

Do you enjoy solitude?  How much solitude do you need and how does it replenish you?

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The Survivor's Nest - Five Tips for Creating Sacred Space

Your sacred space is where you can find yourself again and again. Joseph Campbell

Our lives are so busy and noisy, that we often forget about the healing power of silence. When we're out in the world, it's not usually possible to control the noise level. At home, we can usually turn down the noise, but why not take it a step further and create a sacred space of peacefulness and healing?

After my surgery, I had lots of down time to sit and be and was often drawn to a certain chair in my living room. The chair was comfortable, the room quiet (no television) and the view from my window was lovely during those many spring weeks of disability. I returned to this chair again and again, to meditate, or just to rest.

Gradually, that space became sacred to me. I brought meaningful items into it by creating a makeshift altar. On a tray on the coffee table I gathered votive candles, pictures of my family, and two small Buddhas. A small carved elephant I found in an antique shop became very special to me. I was dealing with a lot during that time and meeting with an oncology therapist for support and guidance. One day she told me I had the emotional memory of an elephant - whatever I remembered, I felt again. That elephant became a symbol to me of my pain and my growing awareness of how I processed it.

You can get started creating a sacred space for yourself by following a few easy steps:

1.  Decide what "sacred" means to you. Do you need a space for yoga, meditation or spiritual connection? To me, sacred means uplifting, peaceful and spiritual. What does it mean to you?

2.  Dedicate a spot in your home that can become sacred. It doesn't have to be a whole room. It can be a corner of a room, the top of a dresser, or any other space you can find. My space is in the middle of my living room. When I am there, alone, it's sacred. When my family is in the space, it's just as sacred, but in a very different way.

3.  Create your own altar.  Find personal items which are meaningful to you. Next to my candles, pictures, Buddhas and elephant, I have a small piece of tile. I found it while taking a walk around my neighborhood and it is really beautiful. To me, it symbolized the importance of getting back out into the world and finding gifts of cancer in places I didn't expect to find them.  

4.  Surround yourself with inspirational icons. Fill your space with meaningful quotes, spiritual symbols, calming music, plants, and any other items that uplift your spirit. Connecting with our spiritual selves opens up an amazing well to drink from when stresses come our way.

5.  Create a ritual. Once you've created your sacred space, how will you honor it? Will you use it to meditate for a few minutes every morning? Will you just sit, with your eyes closed, enjoying a few minutes of peace and quiet? Your ritual can be simple or complicated but, whatever you elect to do, make it meaningful to you.

Take a few minutes to bring peacefulness and healing into your nest by creating sacred space. It's not hard to do and has immense rewards. If you already have a sacred space, I'd love to hear about it.  If I've inspired you to create one, I'd love to know how you made it meaningful to you. 

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Cancer Warriors Wednesday - The Pathways Women's Cancer Teaching Project

Many cancer patients report feeling that something is missing in their medical care - a focus on them as whole people, with real hopes, fears and lives to manage. For most patients, a diagnosis of cancer is only a small part of the challenges faced as they undergo treatment. Their lives still go on and their responsibilities to family and work remain the same.

I've written several posts about my experiences as a patient educator with the Pathways Women's Cancer Teaching Project. Today, I'd like to highlight the organization and the work it does to change the way medicine is practiced so the medical team treats the person, and not just the cancer.

Pathways offers patient panels and one-on-one interviews for medical and nursing students and medical residents to learn first-hand what it is like to have cancer. All of the programs are provided free-of-charge to the healthcare institutions, through a grant currently provided by the Horizon Foundation for New Jersey.

The primary goals of the Women's Cancer Teaching project are:

  • to foster patient-centered, humanistic care by the healthcare system, particularly with respect to the treatment of patients with cancer;
  • to enhance the quality of relationships between the healthcare professional and the patient;
  • to improve healthcare outcomes and treatment compliance; and
  • to provide increased support for women with cancer.

Most medical schools and healthcare institutions do not have a program in which students and medical professionals get the opportunity to meet with and interview real cancer survivors.  Pathways fills this gap and offers residents training programs an opportunity to satisfy requirements for accreditation by the Accreditation Council for Graduate Medical Education. Students and medical professionals are able to simply ask questions and discuss personal issues with the patient educators in an intimate setting, without being evaluated on their ability to provide diagnostic assessments and treatment interviews.

Patient educators say the opportunity to speak directly and honestly with members of the healthcare system enhances their healing and allows them to use this difficult experience as a way to give back.  At  the same time, the students and medical professionals value the opportunity to meet with cancer survivors.  They are moved by the experience and often say they will carry the experience with them throughout their schooling and practice.  As one nursing student noted, "Having a survivor speak from experience is better than any book or lecture."

According to Dr. Jill Gora, Assistant Director of the Somerset Family Practice Residency Program, "Every panel of patient educators challenges our residents to think about those qualities that make a good physician. Medical knowledge alone is not enough. It is only by seeing a patient as a whole person, that they are able to transcend the disease-based model of medical care, and become truly patient-centered, compassionate caregivers."

Isn't this the kind of treatment we all want and deserve?  Have you been lucky enough to get medical treatment which centers on your whole person, rather than focusing only on the cancer?

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Are You Still Struggling With the Loneliness of Life After Cancer?

For almost 18 wonderful years, I've had the privilege of building a close relationship with my daughter. Whether in person, or by phone or text, we like to talk about everything and anything. Today she texted me to say how much she missed her friend who just transferred to another school. She was "lonely" and "bored" without her.

My response: "Think relaxing thoughts. Be your own best friend. You have to be alone sometimes."

Her response: "Yeah, I actually tell myself that a lot cuz of eighth grade when I didn't have friends and that's what you told me."

My response:  "What did I say?"

Her response: "That I have to be okay with being by myself sometimes."

Unlike solitude, which we choose, loneliness is a force we have to work with or risk allowing it to swallow us up. I guess I made a point to teach my daughter about being okay with it once and a while because of experiences in my life.

I grew up in a small Cape Cod house with two parents and eight brothers and sisters. Despite the obvious noise and activity, I often felt alone, especially during my teenage years. I was the oldest, a girl (followed in birth order by four brothers) and my youngest sibling was 14 years younger than me. I often existed in a parallel universe very different from the one inhabited by my siblings.

In my adult life, the most lonely experiences accompanied birth and cancer. The day my daughter was born, I was ill all day and ended up in the hospital severely dehydrated. Dehydration led to labor and she was born at 11:46 p.m. Although I was probably food poisoned, my doctor couldn't rule out infection. To protect my newborn, I wasn't allowed to touch or hold her. Instead, I spent the night in a room, alone, without my new baby or my husband (who I encouraged to go home to rest.) To this day, almost 18 years later, I remember laying there and thinking, "This certainly didn't go as planned." I expected to meet my daughter and have her with me. Instead, my new family was separated and I was alone. 

The second experience came after my mastectomy for breast cancer. After six and a half months of diagnostic tests, doctors visits, and finally my surgery, I was bowled over by the emotional impact of it all. My family, so very relieved that I was alive, was happy to move on and put the whole cancer thing behind them. I found myself again living in a parallel universe very much apart from my family. It was a horribly lonely place to be. 

The cancer-induced loneliness lasted an entire summer. My wonderful oncology therapist helped me tremendously by letting me express my sadness and building anger. With her help, I was eventually able to make my family understand that I needed them to be where I was - that cancer was not yet over for me. 

Life teaches us that we have to handle being by ourselves sometimes. It's an important lesson to learn, but cancer-induced loneliness is bigger than that and not something we should accept as another loss of cancer. If you are finding yourself still struggling, while others around you are only too happy to put your cancer behind them, get support anywhere you can. Seek out others who understand how you feel and with whom you can share your feelings. My therapist helped me carry the overwhelming weight of my loneliness that summer. I shudder to think what would have happened if I had been forced to carry it alone.  

Have you or are you still dealing with the loneliness of life after cancer? What has helped you deal with it?

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Meditation Monday - Tips for Creating Our Own Survivors' Community

We can live without religion and meditation, but we cannot survive without human affection. Dalai Lama 

I love this quote, which Holistic Health Talk for Women radio host Irina Wardas used to open her show last Thursday. As her guest, I was there to talk about our need as cancer survivors for a sense of community with other survivors. Our talk was lively and informational and I was so glad to share my cancer experience with her listeners.

During our talk, Irina asked me a lot of great questions. When she asked me for "one tip" to share with others dealing with cancer, I emphasized the importance of support. In my experience, although my family and friends did their best to be supportive, I also needed the support of others who knew first hand what I was going through. Surprisingly, that didn't only include other survivors, but also oncology professionals who guided me through the minefield of emotions created by cancer.

A large part of our conversation centered on my Gifts and Losses and the Community Gifts and Losses lists on this site. I detailed how I came to write my list and what others can do to write their own. It's a very intense emotional process bringing balance back into our lives after cancer. I love what one of my twitter friends, @PinkKitchen, said about the Gifts and Losses List: "@DebbieWWGN I love this idea of a 'Gifts' & 'Losses' list for #breastcancer. Gives us permission to feel." Thank you so much, Lisa, I couldn't have said it better myself.

If you want to hear my interview, you can go to Irina's website and download our conversation. (You'll also find it on this page, under the email subscription box.) While you're at Irina's site, take a look at two other compelling interviews she did this month with Lisa Grey of PinkKitchen and Brenda Jones of Hug Wraps.

As I discussed with Irina, our need for community was the driving force behind my creation of WhereWeGoNow.com. What do you do to create community for yourself? How has that community impacted upon your cancer journey?

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The Survivor's Nest - 5 Decorator Tricks to Bring Cheer and Healing into Your Nest

A house is much more than a mere shelter, it should lift us emotionally and spiritually." John Saladino

As a place to reconnect, re-energize and reflect, our homes support our healing from all of life's stresses and maladies. A house is truly a home when it lifts us up, especially when we are struggling. Here are five simple tricks you can do right now to bring cheer and healing into your home: 

1.  Let in the Light:   Natural light is a stimulant. In fact, the lack of natural light affects some people so much that they suffer from depression during the colder winter months. Look at your windows and ask yourself if they are letting in enough light. Are your drapes heavy and covering the window?  A decorator's trick is to move your curtain rod out beyond the frame of the window so the drape covers mostly wall and just the vertical edges of the window. This trick makes your window appear larger and you'll see a huge difference in the amount of window you've opened up. If you have a view which doesn't make you happy, put up sheers. They will let light in and soften the view.    

2.  Wake up with Color:  Color is directly tied to mood. We all know that there are colors that engender happiness, such as yellow and red. No need, however, to paint the entire room bright yellow!  Use accessories to bring in pops of color. Scatter throw pillows, vases, flowers, throws and the like around the room. This trick brings in just the right amount of color and can be accomplished in an afternoon after a trip to the local home store.  And the best part? When you tire of a color, simply change it out. You can't do that with a paint can! 

3.  Surround Yourself with Things You Love::  A long time ago, I went to a new client's house. Although the house was beautifully decorated, I noticed there wasn't one personal item to be seen except for a few family photos on one wall. It turned out that the house, formerly the neighborhood's show house, had been bought complete with all its furnishings. This created an interesting problem for my client, who was afraid to move a stick of furniture out of place.  

As much as my client loved her new house, it wasn't yet a home because it didn't reflect the family who lived within its walls. Without personal items, such as books, souvenirs, family pictures, children's art - the list is limitless - the house had no soul and was still just a show house. Take the time to identify items you love, which speak to you of experiences, relationships or beauty, and display them proudly. If you love them, you will love seeing them in your home. 

4.  Revel in Personal Collections:  An easy and cost-free decorator trick is to group collections. Often, clients tell me they don't collect anything. At the same time, I see interesting items scattered around the house which, when brought together, become a collection. Look around your house right now for multiples. Decorators say that three or more of anything is a collection. Don't be limited by labels. Items of the same shape or color can also form a collection. I bet you have an interesting collection right now, just waiting to be discovered and celebrated.

5.  Bring in Natural Accents:   There's something about flowers, pinecones, acorns, branches and leaves that bring life to the indoors. Using natural elements in the home creates a connection between the indoors and outdoors, which lifts our spirits.  Keep it simple and stay away from plastic, which is one of my decorating pet peeves. Whatever you can find in fake flowers will never approach the beauty of just a few cut branches from your backyard. A beautiful vase of real flowers is a focal point that helps rest your mind and calm you.

Wherever you are on your cancer journey, you deserve every bit of support you can find. Our home environments are a huge part of that support system. Do what you can, even if it's just something small, to bring cheer to your home and it will reward you. It was an ancient Greek poet, Pindar, who said, "The best of healers is good cheer."  I'd love to know what little thing you did today to bring cheer and healing into your home.

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Holistic Health Talk for Women Radio Interview Tomorrow at 12:30 p.m.!

I'm very excited! Tomorrow at 12:30 p.m. EST, I will join holistic health talk for women radio host Irina Wardas to talk about "Living a Full Life After Cancer."  

You can listen in by going to the website. If you want to join in the discussion, you can call (347) 857-4862. Suggested questions include:

1.  What about your journey as a breast cancer survivor led you to create WhereWeGoNow.com?

2.  Who is WhereWeGoNow.com for and how do you hope your community benefits from it?

3.  How did you come to create your Gifts & Losses list?

4.  How did your Gifts & Losses List help you heal from your breast cancer treatments?

5.  What issues do you talk about in your blog?

6.  How can I become a member of WhereWeGoNow.com?

7.  How can I add my own Gifts & Losses to the site?

8.  What advice would you give other women struggling to heal from their breast cancer experience?

I hope you can join me.  It would be great to have friends listening because this is my first interview and I'm a bit nervous. If you can't make it, no worries.  You can download the program later at your convenience. See you on the radio!

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Cancer Warrior Wednesday - Send a Heart of Hope Program

Back in June I posted a little love letter to an organization which is close to my heart. The mission of Interregnum, Inc., a grief support organization, is to help people learn to find life after loss. This month, in support of breast cancer awareness, Interregnum, Inc., is launching its Send a Heart of Hope program. 

The new program features beautiful, hand-painted ceramic hearts with a variety of inspirational messages. You can choose from the Breast Cancer Ribbon of Hope heart, or the Reflection, Hope Blooms, Hope Takes Flight, Soar or Inspiration hearts. Choose the design that speaks to you, fill in your personal card, and Interregnum will send your ribboned and gift-wrapped heart on its way. The cost of sending a heart is $25.00. All net funds raised are used to help fund Interregnum’s programs, including its successful Hearts of Hope community outreach program.

The devastation one can experience when receiving a diagnosis of cancer--or any life limiting illness--is a form of loss that often goes unacknowledged. Judith Pedersen, founder and executive director of Interregnum Inc., developed programs of support, education, and compassion for those facing life altering challenges.

It was through the Hearts of Hope program that I came to know Interregnum, Inc. The program engages community groups in the painting of ceramic hearts that are delivered free-of-charge to people transitioning through difficult times in their lives. Recipients have included patients in hospitals, cancer centers and hospices, the bereaved, and men and women in the military. More than 25,000 people have received these beautiful reminders of caring. I have two of these hearts and treasure the message they gave me during difficult times.

For the new Send a Heart of Hope initiative, artists from around the country graciously donated their painting talents to this worthwhile cause. Sue Macheska, Program Director of Hearts of Hope, is "hopeful that people will look forward to sending our hearts, knowing that they are supporting a great cause while bringing a spark of joy and beauty to someone who needs a lift!" 

To order a heart and learn more about Interregnum, Inc., visit the website and click on the Send a Heart of Hope button. This Cancer Warrior Wednesday, I'm so happy to feature the Send a Heart of Hope program because of my gratitude for the Hearts of Hope I received. If you have an organization you are particularly fond of, please share it with me and let me know what makes it special to you.

Meditation Monday - "Your time is limited, so don’t waste it living someone else’s life." Steve Jobs

Although I try to focus on the gifts of cancer, its losses are eternally present. The death of Steve Jobs is a momentous loss from cancer – to his family and to the world. We have lost a genius, innovator, and leader. As a fellow cancer survivor, I am stricken by the reminder of how much cancer has taken and how at risk we all are.

While I grieve his death (most likely) from pancreatic cancer, it's important to be mindful of the inspirational lessons he left us. I'll let Steve Jobs speak for himself about how to live your life fully beyond cancer, as he so eloquently did, and I will be quiet and listen:

The Survivor's Nest - It's Autumn and Time to Seasonalize the Nest

The weather is finally turning cooler, and the air is crisp and clear. It's finally autumn! Although the calendar introduced the season two weeks ago, it was in name only. Summer refused to exit on cue and took its time winding down to its inevitable end. Now autumn is finally here and it's time to seasonalize the nest!

Seasonalize is a word you won't find in the dictionary, but decorators use it a lot. It means to bring your indoor environment in synch with the outdoor environment to reflect the season outdoors within your home. Seasonalizing goes to the core of nesting by fostering snuggling in the fall/winter and lightening up in the spring/summer. I love October and celebrate it every year by seasonalizing my home. By doing so I am acting as a creature of nature and am present within it.

How do you start? It's really easy! Here are a few tips to get you on your way:

1.  When:  I seasonalize twice a year, in the fall and the spring. In the fall, I'm happy to begin the process of hunkering down in the warmth of my home during the cold winter months. In the spring, I'm looking to bring nature in and be part of the outdoors. Like other animals, we are impacted upon by the seasons. When we acknowledge our primal need to be one with the seasons, we are much more comfortable in our indoor environment.

2.  Put Summer in Storage:  Clear out anything that reminds you of summer. Put away beach towels, bathing suits, flip flops, shells, summer-themed placemats, lacy pillows or sheer curtains, summer-weight area rugs, cotton and silk sheets and anything else that is too light and summery to warm you up as the weather gets colder.  

3.  Layer on the Warmth:  Get out the flannel sheets, heavier blankets, and a luxurious throw for the bed. In the living room, put throws on the sofa and change up the accent pillows from lighter summer-themed ones, to fall-inspired hues. Go for jewel tones. Anything that mimics the colors of fallen leaves will work beautifully. If possible, put up heavier drapes at the windows to visually and literally keep cold air out. Replace summery area rugs or cover bare floors with heavy, plush wool rugs. Your toes will thank you. 

4.  Make the Fireplace a Focal Point:  If you're lucky enough to have one, a fireplace can be the star of your fall/winter nest. Make it stand out by bringing the fireplace tools out of storage, rearrange the mantel to feature fall/winter themes (candles, gourds, jewel colored vases, etc.), and make sure there's a stack of firewood ready for use.

4.  Create Seasonal Vignettes:  Just because we want to keep the cold weather outside, doesn't mean we want to be cut off from nature. Put apples and pinecones in a bowl. Gather pumpkins, squash and other gourds from the farmers' market and display them like treasures. Take a hike, collecting interesting leaves, acorns, and rocks along the way, and bring them home to display. 

5.  Set a Seasonal Table:  The richness of fall and harvest time comes alive at the family table. Bring out placemats woven of natural fibers, such as rattan or water hyacinth. Rustic dishes, napkins and heavier trays and serving pieces complete the look. Put a bowl of pears, pomegranates and pinecones in the center of the table. Fall/winter decorating is all about warm, nubby and interesting textures. The table is the perfect place to bring those textures alive. 

The seasons of nature create an ebb and a flow that cycles with perfect balance. When we plug back into that flow and honor the seasons, we resonate and reconnect with life itself.  As cancer survivors, we should take every opportunity to nurture ourselves and return our body, soul and mind to balance. There is no better place to do that than in our own homes. Nesting and taking the time to seasonalize your home honors our place in the world. Let me know if you come up with ideas of your own to bring your nest in synch with the colder seasons.

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