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Reflections on My Fourth Year Cancerversary

When I think of cancer "anniversaries" there is only one date that comes to mind. April 15, 2009 - the day of my mastectomy.

From September 2008 to February 2009, all I remember is a whirlwind of appointments, tests, biopsies, phone calls, internet searches, crying jags and, finally, a diagnosis. You would think I could remember that date, but I don't. I think I had been through too much for too long and simply didn't have the brain power to commit the date to memory.

Finally, there was certainty, but many new questions. I was definitely going to lose my breast to a Stage 0 cancer I hadn't even been sure qualified me as a cancer patient. Now I had weeks to count down the days and contemplate the ramifications:

I remember fear and a feeling of being in the Twilight Zone. How could this actually be happening? Who are these many, many people swarming all around me? How am I going to feel, look, function – survive - when I wake up?    

One year later, I decided I needed to celebrate my anniversary and asked my husband out to lunch. Mind you, I didn't want to celebrate the actual day. No, I was celebrating the fact that I had made it to April 15, 2010. I had managed to create distance from 2009, which included another surgery in September and major emotional issues. It was a major accomplishment that deserved to be celebrated.

That's how going out to lunch with my husband on April 15th became a tradition. Year two we went out again and I considered it "a very good day:"

It is a tremendous gift to know yourself and what you are capable of doing. Once you know it, you can put that faith in your pocket where it will safely stay in case you ever need it again. ... I'll be celebrating my survival, healing and the surprising gifts of cancer.

Year three was reflective and definitely not celebratory. We went out to lunch again, but I was focused on the emotions and fears of the actual day. On a positive note, I did realize how mindfulness and a few amazing people pulled me through.

How do I feel today? I'm not really sure. Initially, I tried to ignore the day and didn't mention lunch to my husband. For the first time, I felt silly bringing it up - like I should be past all that by now. As I wrestled with that feeling, I slowly realized I was on a survivor's guilt trip. If I wanted to go to lunch, I was entitled and shouldn't try to talk myself out of it.

After all that, my husband said he had remembered our tradition, but wasn't able to work out his schedule. Rather than disappointing me, he validated the importance of our tradition to both of us.

I don't know how I'll feel next week when we go out to lunch. Even four years later, it's clear to me that I'm still dealing with a moving target.  I shed some tears as I read my earlier cancer anniversary blog posts, but posting to my Facebook page drew many supportive responses. We had an excellent discussion and, once again, the nurturing of other survivors who "get it" teaches me the most important lesson I've learned over the last four years, "I am not alone!"

Survival > Existence,

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Mindfulness & the All-Time Best Definition of Success

From my vault: I so love the following quote that it inspired me to create a poster to go with this blog post from my Mindful Monday series. You can download your free poster here.

"To laugh often and much; To win the respect of intelligent people and the affection of children; To earn the approbation of honest critics and endure the betrayal of false friends; To appreciate beauty; To find the best in others; To give of one's self; To leave the world a bit better, whether by a healthy child, a garden patch or a redeemed social condition; To have played and laughed with enthusiasm and sung with exultation; To know even one life has breathed easier because you have lived - This is to have succeeded."  Ralph Waldo Emerson

I read this quote and it stopped me short because I couldn't possibly come up with a better definition of success. As I read it again, it struck me that none of it is possible without mindfulness. 

Without a conscious awareness of what you are feeling or experiencing in the present moment how can you really laugh? Without mindfulness, how can you see all the beauty around you? How can you appreciate the best in others or know how best to give back for all you have been given? Without mindfulness, how can you enjoy your relationships and raise happy and healthy children?

Yesterday morning I awoke with nowhere to go and nothing pressing to do. The week before, including Saturday, had been incredibly busy. As I enjoyed being exactly where I was with no pressing thoughts it struck me that I rarely felt calm during the week. The reason - because I resist mindfulness in favor of "busyness."

We are all incredibly busy. But, Emerson's quote reminds me that "busyness" alone will never bring us the success of which he speaks. In fact, I'm starting to understand that a life based solely on "busyness" risks the opposite of success.

What is your definition of success? Have you found that a traumatic life experience has redefined success for you? Do you struggle with balancing "busyness" with mindfulness? Don't forget to download your free poster. 

Survival > Existence,

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Want Relaxing Holidays? Less Martha, More Mindfulness

This time of year is a mixed bag for many of us. We look forward to family togetherness, joy, love and celebration. But, too often, expectations outstrip reality and stress is the result.

If you're like me, that doesn't mean you don't chase the fantasy. Earlier in my career, I did my best to create the Norman Rockwell inspired family holiday. I let Martha Stewart, the goddess of all things "perfect," cajole me into impossible, time consuming projects. (I finally quit her when she seriously suggested growing your own grass for Easter baskets.)

Eventually, you learn to lighten up. But the dream of a White Christmas, perfect children, harmonious family celebrations, and all things magical persists.

What's the antidote to holiday stress? Mindful awareness and acceptance of the present moment.

With mindfulness you ratchet down your expectations and enjoy the little things. You're less likely to over plan, overspend and overdo. There is no "should" and "must." There is only "be."

Mindfulness and striving for Martha Stewart-perfect just don't mix. As chef Jacques Pepin summed up "perfectly:" 

"When you are at home, even if the chicken is a little burnt, what's the big deal? Relax." 

Wishing you a mindfully relaxing holiday season!

Survival > Existence,

Related Posts:

Meditation Monday - 5 Tips to Reduce Holiday Stress

10 Little Things to Do with Mindful Awareness

The Survivor's Nest - My Number One Tip This Holiday Season

The Survivor's Nest - Five Tips to Make Your Home Party Ready

Happy Fourth of July!

"You have to love a nation that celebrates its independence every July 4, not with a parade of guns, tanks and soldiers who file by the White House in a show strength and muscle, but with family picnics where kids throw Frisbees, the potato salad gets iffy, and the flies die from happiness. You may think you have overeaten, but it is patriotism." Erma Bombeck

When I was a kid growing up in Middlebush, New Jersey, every 4th of July was celebrated the same way. The day kicked off at 10 a.m. with the Middlebush Volunteer Fire Department parade. Every kid under the age of ten decorated his or her bike, tricycle or wagon with red, white and blue bunting and joined the parade. The fire engines led the way, sounding their horns and stopping traffic. After the parade we stood in line for juice, cookies and a small prize. It was small town America at its best.

Later that afternoon, we had a family picnic in the back yard.  I always felt that summer started with that parade and I remember it fondly.  

I don't make it to the Middlebush parade anymore, but the 4th of July picnic is still a family tradition. Later today, we will congregate at my niece's new home (she and her husband just got married last month.) There are more of us than there were when I was a kid, but the day is still about family, potato salad, Frisbees, patriotism and the beginning of summer. 

Happy 4th of July to all of my readers who celebrate. Have a wonderful, fun day and mindfully enjoy every moment!

Survival > Existence,

Copyright (c) 123RF Stock Photos

Mindful Monday - Courageous Women with Cancer

A friend sent me this poster last week, with a short message, "There is a great blog topic in here. I know u will find it! :)" I immediately laughed when I read it and then, of course, it got me thinking.

Over the past three years, I've met many women with cancer, in person and virtually. They all have one thing in common - an uncommon depth of courage.

It takes courage to hear a cancer diagnosis and not actually fall on the floor in a heap. It takes courage to tell your family and friends and be more worried about how they are handling it than you are about yourself. It takes courage to show up for tests, treatments and surgeries, all the while battling your "flight or fight" reflex. It takes courage to heal the emotional and physical scars of treatment and somehow accept the "new normal" of life beyond cancer.

When faced with all we have been through as women with cancer, it's very probable that our first instinct was to "run like hell." It certainly was for me. But, we stood our ground and did what we had to do. That's bravery, that's courage and that's how we live our lives as women with cancer.  

Because of the courage I've discovered in myself and the other women with cancer I've met, I'm inspired to keep living courageously every day. Thank you to my friend who sent me this poster (one of the bravest women with cancer I know) and all of you. Now, get out your cymbals and do one brave thing today!! 

We must build dikes of courage to hold back the flood of fear. Martin Luther King, Jr.

Success is not final, failure is not fatal: it is the courage to continue that counts. Winston Churchil

Courage is resistance to fear, mastery of fear, not absence of fear. Mark Twain

Faced with what is right, to leave it undone shows a lack of courage. Confucius

Who could refrain that had a heart to love and in that heart courage to make love known? William Shakespeare

One man with courage is a majority. Thomas Jefferson

All our dreams can come true, if we have the courage to pursue them. Walt Disney

One isn't necessarily born with courage, but one is born with potential. Without courage, we cannot practice any other virtue with consistency. We can't be kind, true, merciful, generous, or honest. Maya Angelou

Your time is limited, so don't waste it living someone else's life. Don't be trapped by dogma - which is living with the results of other people's thinking. Don't let the noise of others' opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition. Steve Jobs

Mindful Monday - A Perfect Moment

What is a Perfect Moment? Eugene O"Kelly

Last week, I wrote about Death and Cancer Loneliness and one woman's approach to dying and saying good-bye. Our conversation reminded me of a book I read years ago, Chasing Daylight, How My Forthcoming Death Transformed My Life, by Eugene O'Kelly. A memoir about the last three and a half months of his life, Mr. O'Kelly decides how to spend his last days before succumbing to brain cancer. 

I haven't been able to get this book out of my mind. Rereading passages, I was instantly struck by Mr. O'Kelly's discovery of the Perfect Moment. As a hard-driven corporate executive, Mr. O'Kelly traveled extensively and worked crazy, long hours before his diagnosis. Suddenly, his life changed:

What was a Perfect Moment? Usually it was a surprise, though sometimes I could see it unfolding. Sometimes I could help to engineer it, by creating the circumstances that would allow it to happen, but the best details about it were still a mystery until they happened. A Perfect Moment was a little gift of a moment or an hour or an afternoon. Its actual length was never the issue. The key thing was that you had to be open to a Perfect Moment. The radiation machine breaks down; one hour is going to come and go, an hour you can hardly spare; but then you accept that machines break down. You don't get frustrated. You remember that it's a waste of energy. You focus instead on something pleasing. The rhythm of your own breathing. The intricacy of the face of the person seated across from you. The beautiful poem your daughter wrote called "Traveler's Fear." The color of the sky out the window. ...

My openness to Perfect Moments, I realized, may have been my own end-around at getting to consciousness, to the present moment. And I hadn't seen it.

At the end of his life, Mr. O'Kelly had discovered mindfulness. Before his diagnosis, he had been too busy. Now, he felt "heightened awareness frequently." He was becoming "sensitive simply to life itself."

I read this book several years ago, before my own cancer diagnosis. Rereading it now, I realize it really isn't about death so much as it is about choosing how to live. It's a choice we all have to make.

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Mindful Monday - Happy Presidents' Day

Always bear in mind that your own resolution to succeed is more important than any other. Abraham Lincoln

Happiness and moral duty are inseparably connected. George Washington

The Survivor's Nest - Valentine's Day

Love begins at home, and it is not how much we do... but how much love we put in that action. Mother Teresa

Because Valentine's Day is right around the corner, it's time to talk about love. The obvious Valentine's Day symbols - hearts, flowers, chocolates - aren't bad in their place. I've always been happy to receive them. But, what about making your expressions of love more personal and heartfelt?

There's a saying in my house that goes like this, "It's the little things." Mostly my husband says it, and usually in response to my request that he be a bit more romantic.

The Survivor's Nest - Learning and Comfort in the Nest

When I learn something new - and it happens every day - I feel a little more at home in this universe, a little more comfortable in the nest. Bill Moyers 

I'm middle aged (of course, I'll have to live to 100+ for the term to apply literally) and a long way from my school days. But, learning something new every day, is one of my greatest joys and a true gift of my cancer.

Because of cancer, I learned how important exercise is for my body and I took up yoga. I've learned how fun it is to do Zentangle art, and how easy it is to donate blood. I've learned the importance of mindfulness and the

Running on Empty - Coping with Cancer Stress

I selected this post to be featured on Breast Cancer Blogs. Please visit the site and vote for my blog!

Nobody realizes that some people expend tremendous energy merely to be normal. Albert Camus
 
For those of us blissfully past the cancer diagnosis and treatment stages, the outward signs of life as a "patient" are long gone. Our hair has grown back, we've recovered from surgeries, and our scars lay hidden under our clothes. We are certainly healthier, and we should be happier, right? But the transition from patient to cancer survivor is not an easy one and the new normal brings its own cancer stress.
 
Even for prisoners, the re-entry phase into normal society is usually gradual, but such is not the case for most cancer survivors. Family and friends want to return to normal life as soon as possible, and who can blame them? The cancer survivor wants that too, of course. But what we want is not always what we are capable of achieving, which causes even more cancer stress (and often, full-blown cancer anger.) After all we have been through, we are running on empty and only capable of so much.  
 
What is "normal" after cancer, anyway? Now that I must visit my oncologist every six months for the rest of my life, it's become normal. Unfortunately, it's also normal to be anxious before each visit. My last visit was the worst, because I thought I had a small lump in my one remaining breast. I waited the two weeks between the discovery and the appointment, certain it was nothing. Of course, by the time I got there, I was a wreck. Not telling anyone, to keep them from worrying, worked fine when I was in denial. But, it was really awful when I was in full-blown cancer stress. 
 
And what about the yearly mammograms, which have caused panic for two years running? Both times I was called back for more tests, thus re-enacting Cancer Year One. How do you process the new normal cancer stress when it feels exactly like the patient cancer stress? Keep telling yourself you've got all kinds of support you didn't have the first time, etc., etc., etc. Still.....I am stressed out. 
 
Over the past several months, I've been feeling a malaise which isn't depression, but steers well clear of happy. It took me months to realize that the culprit is most likely the tamoxifen I've been taking for the past 28 months. I've been sleeping very badly for a long time now, sometimes waking up three to four times a night. That too is becoming normal, which is why it took me so long to realize it probably had something to do with my unhappiness during the daylight hours. I'm still figuring out what to do about that.
 
There's also the physical side-effects of my surgeries, which cause pain in my abdomen. No one can see it, so no one knows about this cancer stress. It's my new normal and mine alone. Did I mention cancer loneliness as another cancer stress?
 
Finally, don't get me started on the cancer stress caused each October, when pinkification falls on you like an avalanche of kitsch. And, because I know I'm complaining, I'm cringing with survivor's guilt, yet another cancer stress. I know how lucky I am, especially as compared to so many who are struggling with so much worse. I just wish none of us had to suffer the life-long effects of our cancer diagnosis.
 
It's so easy to fall into the dark side of the new normal, where running on empty is taken for granted because it's just the way it is now. I have to keep trying to focus on yoga, breathing, writing, mindfulness, exercising, and zentangle art to counterbalance this effect. Is your new normal taking all of your energy? What do you do to reinvigorate yourself?

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