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Welcome to the WhereWeGoNow Community!

Welcome to the WhereWeGoNow Community!

on Sun, 09/25/2011 - 14:39

Every single one of us who was diagnosed with cancer remembers that moment when we went from blissful ignorance of cancer, to concentrating our entire being on beating it back. We began the marathon with the process of initial diagnosis, which can take weeks or months and involves scary and painful testing. We pushed through to treatment, terrified to submit to surgery, chemotherapy and/or radiation, but courageously facing what needed to be done. Now, after that crazy time of tests, doctors, treatments, hospitalizations, chemo sessions, etc., we are able to take a breath and ask ourselves – Where do we go now?

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Are You Still Telling People You're Fine When You're Not?

"There is no greater agony than bearing an untold story inside you." Maya Angelou

"I'm tired of telling people I'm fine when I'm not." Debbie Woodbury

I founded WWGN because I wanted to continue sharing with other people who "got it." Along the way, I discovered that telling my cancer story and finding support were the keys to creating inspired healing, wellness and live out loud joy.

Twelve days ago, I appeared live on GE Healthcare's Breast Cancer Mosaic webinar and shared my story in great detail. I talked about all aspects of cancer's impact on my life, including:

Receiving a diagnosis;
Survivor's Guilt;
Body Image;
Loneliness;
Gratitude;
Giving Back;
Family Responsibilities;
and so much more.

The overarching message I wanted to share was the importance of finding a community of people who completely understand where you are. As I talk about in the video, it took me a long time to find support (over six months.) When I finally found it, I felt as if someone had thrown me a lifeline and saved my life. With that support I gradually found validation and strength, which enabled me to take responsibility for telling my story - rather than keeping it locked inside me. 

To all of you who sent me questions during the webinar as part of the #BCMTalks twitter chat, thank you so much for your participation. Much thanks also to those of you who wrote to tell me that my vulnerability (some tears were shed) inspired you to open up too.

When you have the time, I'd love you to watch my video so I can share my story with you. Even better, I'd really like you to share your story with me in the comments below.  

Survival > Existence,

Related Posts:

Express Yourself - Tell Your Untold Story

Do You Share Your Bad Attitude Toward Cancer?

Do You Want to Find Support - Communicate!

Six Things You Need to Find Your Divine, Female Creative Power of Reinvention


Comments

Helen's picture

I even told the oncologist this morning I was fine!! But then I managed to back track a bit and tell the truth. She was great, and supportive, and encouraging. Always best to come out with it if you can. But it depends who you're talking to - doesn't it?!

Debbie's picture

Hi Helen!

You're absolutely right. It's up to you who to share your truth with; what's important is that you not hold it in when sharing would benefit you. I'm glad you opened up to your oncologist and that she responded well. That's all good news and good for you for being brave and allowing yourself to go beyond the usual "I'm fine" answer.

Be well!

Debbie

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How to Cope When Mama Bear Has Cancer

I tell my cancer story a lot. I tell it here at WWGN and to groups of medical professionals as a patient educator with the Pathways Women's Cancer Teaching Project. Last Thursday I told it to the world in an hour-long live GE Healthcare Breast Cancer Mosaic webinar. 

It's an emotional story, of course, as anyone who has been diagnosed with cancer knows. After four years and many retellings the details have gotten a bit easier to recount - except in one area. My husband. My children. My family. When I get to their part in my cancer story, the same tidal wave of emotion that hit me then hits me again. And all I can do is accept and dive into the wave.

It's hard to explain, but anyone who loves doesn't need an explanation. My 19-year old daughter was a newborn when I held her in my arms and first felt it. An overwhelming surge of protectiveness washed over me. In an instant I claimed my primal she-bear fierceness and it imprinted on my psyche forever.

Fifteen years later, the phone rang and I learned my mammogram was suspicious. Because I was alone when the call came, I thought it made sense to sneak back to the breast center for more pictures without telling my husband. What possessed me to put protecting him from worry above having him with me? When I came home and had to tell him the truth (and that I now needed a stereotactic biopsy) I felt the guilt of causing him pain.

Four and a half months later, I had a surgical biopsy and returned to the breast surgeon's office to hear my diagnosis. I was alone again. When I think back on it now, I realize with some shock that my husband wasn't there because I kept him away (he had gone to every appointment and test since I leveled with him.) Again, I prioritized protecting him above letting him be there for me at a critical moment. 

Through the entire diagnostic phase, we didn't tell our 15-year old daughter and 12-year old son anything. We felt it was better to wait until I had a diagnosis and treatment plan. When we finally sat them down, I was glad I could tell them I wasn't going to die and would be back to normal after my mastectomy (shows what I didn't know back then.) I remember being shocked at their response, which wasn't good. When I look back now, I realize I had focused so intently on protecting them from bad news that I had deluded myself into thinking I had been successful.

After my mastectomy, I felt extremely isolated. As hard as it was to share bad news about my health, it was even harder to share the emotional aftermath of my diagnosis. My she-bear wanted to be better, happier and move on for the sake of my family, which caused the rest of me to resent my loneliness. 

Now, when I speak with the Pathways Women's Cancer Teaching Project I talk about my children and husband knowing I will tear up because their pain still makes me very emotional. I push on because doctors and nurses need to know how significantly a patient's role as a wife and mother affects her cancer experience. 

This is the unspoken burden of women with cancer. We are inseparable from our roles as caregiver, nurturer, confidant and emotional touchstone. We take care of others before we take care of ourselves. Our she-bear instinct is primal and viciously strong and it will over-protect what we care about most in the world  - our partners, our children, our parents, our families and our friends. 

We can't help it because our overwhelming drive to protect our loved ones, even to the detriment of ourselves, is a force of nature. We're never going to stop feeling and acting on it, but we must come to grips with reality. Even a she-bear needs to take care of herself so she can continue taking care of others. 

This is what I learned the hard way and what I now share with you. In addition to your family and friends, build a support network that is there just for you. No one should do cancer alone - and by that I mean without other people who "get it" and are there to support you without needing you to care for them. Laying down your she-bear once in a while is necessary to healing. And then, when you're a bit stronger, you can get back to being Mama Grizzly.

Survival > Existence,

Image credit: 123RF Stock Photo

Related Posts:

Survivorship & Giving Back: The Pathways Women's Cancer Teaching Project

The Secret to Making Your Way on Your Cancer Journey

Running on Empty - Coping with Cancer Stress


Comments

bari's picture

Debbie-this was a truly beautiful piece. Do you know about the blog Better AFter 50? I just had an article published about an interaction I had with my mom who has Alzheimers Disease. Check it out --and if they don't know about you send some of your pieces! That mother/child relationship is ever so special. Best, Barii

Debbie's picture

Bari:

Thank you! I will definitely check out Better After 50. Hope all is well with you and Hearts of Hope!

Take care,

Debbie

 

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Exciting News!! Join Me Thursday for a LIVE Webinar!!

Big News!! This week's blog post isn't a blog post. It's a LIVE webinar!!
 
On Thursday (May 30th) at 11 a.m. EST, I'm appearing LIVE on GE Healthcare's Breast Cancer Mosaic webinar. I hope you will join me!

I'm excited to share my story, including how I was diagnosed, treated and supported (or not.) I'll also talk about the impact of cancer on my life, family, body image, etc., etc. Most importantly, I want to talk with you about the importance of telling our stories, in person and on social media. 

The best part of this webinar is that I get to hear from you! Join me live, submit your questions and I'll answer them during the last 20 minutes of the hour-long webinar. This is a real opportunity for you and I to communicate in real time! If you can't make it to the live webinar, the video will be made available at a later date.

Make sure to mark your calendar now! On Thursday morning, go to the GE Healthcare Breast Cancer Mosaic link. I'll be there at 11 a.m. EST and I'm looking forward to hearing from you!!

Survival > Existence, 

Copyright (c) 123RF Photos


Comments

Barb's picture

What is the name of the organization you mentioned in today's webinar and their phone number - Cancer Hope _____ and 1-800-552-____? I found your talk helpful just very early for those of us in Arizona! Thanks.

Debbie's picture

Barb:

My pleasure! It's the Cancer Hope Network and their phone number is 1-800-552-4366. Call them to connect with a support volunteer that is specifically matched to you. Thanks for listening to my webinar! I really appreciate it. Sorry, for the early hour!!

Survival > Existence,

Debbie

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The WWGN Gratitude Gems Series eBook is Here!

Good Morning!

This morning I want to share my first downloadable eBook with you:

The WhereWeGoNow Gratitude Gems Series; Your 30-Day Guide to Jump Starting a Lifetime Gratitude Practice.

Writing this book was a labor of love. I firmly believe gratitude is the single most important building block for reinventing life beyond cancer. Without gratitude, there is no hope. With gratitude, anything is possible.

The book includes 30 days of inspirational gratitude quotes and tips to get your gratitude practice on its way. Plus, I've included a Special Bonus - access to my Gratitude Gems video slideshow. It's three minutes of calming reflection and relaxation and is sure to get you into an attitude of gratitude. 

The price of the book and bonus video is $15.00, but I'm offering it at a special introductory price of 25% off until May 31, 2013. Make sure to enter coupon code WWGN to get your discount.

Buy now and download today to get started. (If the PayPal button didn't show up in your email, follow the link to the post on WWGN.)


Coupon Code

After making your purchase, make sure to return to WhereWeGoNow to download your eBook.  If you need assistance, email me at:

debbie@wherewegonow.com.

I'll get back to you within 24 hours. Thank you again for being a part of this wonderful community of inspired survivors!

Survival > Existence,

Copyright (c) 123RF Photos

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Perks of Being a Member of the WWGN Community

Good Morning!

This morning's post is a love letter to you. Every time I publish a new blog post, it flies directly to your inbox the next morning. You are a very special member of WWGN and I want to let you know how much I appreciate your taking the time to read my blog posts every week. It's a privilege sharing with you. (If you're reading this post and you're not on the email subscription list, please sign up here.)

Because I have two email lists, I wanted to make sure you were aware of the other one. If you haven't done so already, please subscribe to the WhereWeGoNow newsletter and updates list. At present, my newsletter comes out every two weeks on Sunday mornings. When you subscribe, you'll also get a free copy of The WhereWeGoNow Manifesto - 20 Intentions for Your Inspired Survivorship and a special coupon code for breast cancer survivors who need help moving their bodies again after treatment. You'll find the sign up box right below this article.  

If you're into social media, you can find me on Facebook and Twitter, too. That's where we're having conversations in real time!  

Tomorrow, I'm going to publish another blog post letting you know about my new eBook! I'm so excited I finally finished it and sent it out into the world. I hope you like it and I will tell you more about it in my next post!

Thanks again for being an active member of the WhereWeGoNow community. I'm so happy you are here with me creating inspired healing, wellness and live out loud joy! 

Survival > Existence,

 

Copyright (c) 123RF Photos


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